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Adverse Pre-Natal Diagnosis

Perinatal Hospice Care

Are you faced with a severe or fatal prenatal diagnosis?

What if there was a medical team who worked hard for you and your baby to enjoy every precious moment together in a loving environment?


The Neonatal Comfort Care Program utilizes a multidisciplinary team to address the complex needs of infants and their families. The team includes a nurse coordinator, social worker, speech pathologist, child life specialist, psychologist, and chaplaincy, who all work together to create comfort for babies in a compassionate, loving environment.

Here is a talk by Dr. Elvira Parravicini, founder of the Neonatal Comfort Care Program, from the GIVEN forum.


Be Not Afraid

An Adverse Prenatal Diagnosis often leaves expecting parents concerned and flanked with questions and mounting pressure by hospitals or physicians. In spite of that, there are resources and networks of support that assist during this challenging time in a pregnancy.

BeNotAfraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within the site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis. By sharing their experiences, families hope to offer encouragement to those who may be afraid to continue on.

Former Senator Rick Santorum writes about the gift of his daughter, diagnosed with Trisomy 18, in this article. The New York Times also published an informative article, called “Laws of Physics Can’t Trump the Bonds of Love”.


Wright’s Law: A Teacher’s Unique Lesson

Watch this profile of Mr. Jeffrey Wright and his son, Adam, who lives with a rare disorder called Joubert syndrome. Mr. Wright describes the grief upon initial diagnosis and the joy and love Adam and brought into their world since then.


Resources for Support: NY area & beyond


Suffering a loss after a difficult diagnosis? 

Visit the Office of Family Life’s Bereavement page for support and guidance after the loss of a loved one.

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